Here you’ll find resources I find indispensable.


  • The Mastocytosis Society The Mastocytosis Society Website
  • TMS Emergency Room Guide The Mastocytosis Society Emergency Room Protocols – We run into a lot of ER doctors who have no idea how to treat our unique reactions!
  • CIU and You You’ll find Vicki Lawrence’s story here as well (Yes, Mama from Mama’s family is a fellow sufferer!)
  • What is CIU? (This is the Xolair site, but has some great info)
  • CIU – Mayo Clinic
  • Healing Histamine Some people find relief by modifying their diets and decreasing their intake of high histamine and histamine releasing foods. 
  • Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity – Book by Dr. Lawrence Afrin – This book was a wake up call about what I had
  • Mast Cell Research Dr Lawrence Afrin’s website








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